Archive for June, 2013


It truly has been a delight to play this “chase” game with God.  It was probably more like Hide-and-Seek.  Sometimes you need to take a break and have some fun.  The past two weeks God knew what I needed and I needed to find and follow Him.  He has been so good to keep be focused on the end, which was never Colorado or Charleston.  The end is Lydia being completely healed and protected as she walks through the fire.  I know that as long as we are  where God directs, in our physical location, in our mind, and in our heart there is nothing to be afraid of.

With my eyes on Him and knowing that He is completely in control of making sure Lydia is healed from Leukemia and protected from the radiation and chemo, the “where” didn’t matter.  My center is not in a location or even a treatment plan, my where is in being where God is.  God spoke to Lydia January 25th and told her she was Shadrach.  We read the complete story in Daniel 3.  The Son of God walked with them in the fire.  So as long as we are where the Son of God is, we are in the right place.  For Lydia, it is Charleston.

Finally the email came, and Dr. Giller from CO endorsed the plan we were given by the doctor in Charleston.  I may never know the reason why God enticed me to play Hide-and-Seek with Him, but it was fun and reminded me of a lot of promises He has given us from the past for our NOW and future.  As much as others were making their decision ahead of the answer, it didn’t matter which place was better or if things were taken care of financially, it has always been about where the Son of God would be walking with Lydia.

The walk that Lydia has before her is incredible and we must now focus on that.  God promises every believer that He will never leave us nor forsake us…that even though we walk through the valley of the shadow of death we will fear now evil for God with us!!!  Radiation is evil.  Chemo is evil.  The lack of care of and concern by the medical world is evil. BUT GOD…

Psalm 27: 1-6

The LORD is my light and my salvation; Whom Shall I fear?  The LORD is the strength of my life; of whom shall I be afraid?  When the wicked came against me to eat up my flesh, my enemies and foes, they stumbled and fell.  Though an army may encamp against me, my heart shall not fear; though war may rise against me, in this I will be confident.  One thing I have desired of the LORD that will I seek: that I may dwell in the house of the LORD all the days of my life, to behold the beauty of the LORD, and to inquire in HIs temple.  For in the time of trouble He shall hide me in His pavilion; in the secret place of His tabernacle He shall hide me; He shall set me high upon a rock. ( I have written in my Bible: God doesn’t hide you out of view, He hides you out of reach!) And now my head shall be lifted up above my enemies all around me; therefore, I will offer sacrifices of JOY in His tabernacle; I will sing, yes I will sing praises to the LORD.

We just finished Lydia’s 3 CDs.  The first one is called Lydia’s Battleground, followed by Through the Fire, and the 3rd CD is Walking with Jesus!!!  So we will not be afraid, we will sing, yes we will sing praises to the LORD!

We check in tomorrow afternoon in Charleston.  Lydia is scheduled for radiation measurements and CT scan first thing Monday.  After they make the lead plates to protect her lungs and layout the rays of the radiation she will begin 3 days of radiation twice a day, followed by 5 days of chemo.  This is supposed to wipe her bone marrow and immune system.  At that time, she is scheduled to have one day of rest then they will give her the stem cells from the cord blood.  The 4 possible donors had different things that kept them from being the donor.  Therefore the doctor has chosen a cord blood match instead of looking for others.

Continue to pray with us:

1. God to completely protect Lydia from the affects and risks of radiation.

2. God to completely protect Lydia from the affects and risks of chemo.

3. God is her shield from all sickness.

4. For God to direct the grafting of the bone marrow to Lydia without any complications or delay.

I have never seen a warrior like Lydia.  She praises God with no reservation.  She knows His love for her and that He is with her.  There is not a question in her mind about God’s goodness toward her.  She has heard what the doctor has said; but she knows what God said before she stepped into the blazing furnace of fire, “I will walk with you there and you will come out, the fire has no power over your body.”

GAME OVER…No way!  Not until victory is ours!!

1 Corinthians 15:57

But thanks be to God, who gives us the victory through our Lord Jesus Christ.  Therefore, my beloved brethren be steadfast immovable, always abounding in the work of the Lord, knowing that your labor is not in vain in the Lord.

1 John 5:4

For whatever is born of God overcomes the world.  And this is the victory that has overcome the world-our faith.

Mighty warriors of the LORD stand and fight with us, keep the faith for the prayers of the righteous avails much (Hebrews 4:16c).

Walking with the Son of God,



Read Full Post »

Received an email tonight, June 27, that Dr. Giller from Colorado is reviewing Lydia’s records in order to send his recommendation to MUSC tomorrow.  Lydia is scheduled for surgery at 9am.  We trust God to orchestrate what is best for Lydia. Only He knows so we trust His leading.  I love my God.  Let me tell you what He has done so far:

1. Lydia has NO Leukemia cells in her bone marrow or blood!!!

2. Lydia is a walking miracle!!  She has never been sick since treatment began in January.  She has only been in the hospital for treatment.

3. While in the hospital we have been able to share God’s love and hope as we strengthened parents, children, nurses, staff, and doctors with prayer, Scriptures, and worship music while in Columbia and Charleston.

4. Second opinion was approved, being prepared, and sent to MUSC by Friday (June 28).  BEFORE scheduled treatment plan begins.

5. We have been protected in all our travels!!!  Wednesday, after driving from our house to Charleston and back out to Summerville we stopped at the store.  One of our tires was completely flat and you could see where we had driven on it flat.  Lydia and I went back in the air conditioned store and within 15 minutes AAA was there and had us headed to a tire shop.  We praised God all the way home because in all our traveling we have seen day after day accident after accident.  We could have had an accident or been stranded on the side of the road with no air conditioning but God protected us!!!

6. Abigail, Josiah, Selah, and Charis were able to stay in Iowa with Grandparents.  This allowed them to be in a secure place with coninual care, and personal activities for each one.

7. Abigail and Josiah were able to play on ball teams in Iowa and both are playing in the championship games Friday night (June 28).  She’s a home run hitter and your never gonna get her!!! Go Abigail!!  You can do it Josiah!!!  Hit that ball and run, run run!!!

8. Abigail, Josiah, and Selah were able to take swimming lessons and be a part of the library program.  Selah is so proud of her certificate and that she jumped off the diving board!  Way to go Selah!!! We are so proud of you!

9. Abigail, Josiah, Selah, and Charis were able to enjoy the pool, playground, VBS, and Black Dirt Days!!!  Brittany got a video of the children doing their VBS song!  Fantastic!  Oh what fun they had at Black Dirt Days!!

10.  Thank you Lord for no long distance bills so we can talk to our children any time and Skype!  (Although seeing them makes it harder to be away from them.)

11. Lydia’s playlist is scheduled to be finished and available by Friday (June 28)!!!  (Will let you know how to get it.)  Keeps her focused on God’s love never fails.  She is mighty in the LORD indeed!

We will be singing loud and proud all the way to Charleston tomorrow morning for our God goes before us to make a way for our victory.

2 Chronicles 20:1-20 (abbreviated)

A great multitude was coming against Judah.  Jehoshaphat wet himself to seek the LORD…he declared the greatness of God, that no one is able to withstand God…when we enter His presence He will hear and save…Now all Judah with their little ones…stood before the LORD.  The Spirit of the LORD came upon Jahaziel…”Listen all of you…Do not be afraid nor dismayed because of this great multitude, for the battle is not your’s, but God’s.  Tomorrow go down against them…You will not need to fight in this battle.  Position yourselves, stand still and see the salvation of the LORD, who is with you!…Jehoshaphat stood, “Believe in the LORD your God, and you shall be established,…he appointed those who should sing to the LORD, and who should praise the beauty of holiness, as they went out before the army and were saying: Praise the LORD for His mercy endures forever.  Now when they began to sing and to praise, the LORD set ambushed against Ammon, Moab, and Mount Seir, and they were defeated.  So when Judah came to a place overlooking the wilderness, they looked and No one had escaped!

We go tomorrow praising our God.  He is so very good to us.

Living in His Presence,



Read Full Post »

Have you ever had “one of those” moments?  One where you said, “Wow, what a coincidence”.  At that moment you pondered how it all could have been put together for these two things to collide at that moment.

Since Lydia was released from the hospital June 10th, it has been like putting a puzzle together.  I wouldn’t call it a coincidence, but God directing our path.  When I didn’t know God’s voice or how He spoke to me, I explained it as a “coincidence” but I always wondered if it was God directing things.

For our latest treatment, Lydia was in the hospital for 21 days even though they said it would take 30 days for the giving of and recovery from the chemo.  And on the 21st of June these verses went rolling through my head so I had to look them up, Isaiah 43: 16, 19, and 21

Thus says the LORD, who makes a way in the sea and a path through the mighty waters,…Behold, I will do a new thing, now it shall spring forth; shall you not know it? I will even make a road in the wilderness and rivers in the desert…This people I have formed for Myself; they shall declare My praise.

The definition of a coincidence is a striking occurrence of two or more events at one time apparently by mere chance; the condition or fact of coinciding.  However, I believe now in the work of God on our behalf not in apparent chance.  In Romans 8:28 it says, “And we know that all things work together for good to those who love God, to those who are the called according to His purpose.”

He makes our path straight.  He makes a way when there is no way.  We are at “that” point right now.  The day after we got out of the hospital I was getting online to check my email.  I go through MSN and they have the day’s headlines scrolling if you want to read them.  The one that was showing when I got online was “Top 10 Pediatric Hospitals in America”.  Naturally this caught my attention.  I was wondering if MUSC was on it.  Nope, but #7 was Children’s Hospital Colorado.  I paused as I remembered back in November when the Lord spoke one word to me in the middle of the night as I was driving to Texas to visit family for Thanksgiving, “Colorado”.  That night I listened but nothing else was said.  So I left it alone.  Can’t force the hand of God, you just have to listen and be ready to follow when He leads.

A month later He said that we would be starting school somewhere else.  A couple of weeks later He told me Lydia had cancer (but I prayed because there was no proof, I had just had her to the doctor thinking she had an ear infection and he said she was good).  A week after that He said not to fill our freezer or pantry.  There was such an urgency to it all that it made me feel like in one swift movement all would be changed.

Three weeks later, Lydia was diagnosed with ALL Leukemia, friends supplied us with so much food our freezer was bursting, and we will be in a new place when school begins because we will be keeping the family together wherever the transplant takes place.  So after all that how could I toss to the wind Colorado?  It was 7th and Lydia is 7, we have 7 in our family, and we always park on the 7th floor when going to appointments. 7 is the number of perfection and completion.  In God’s timing all things will be made perfect!

The next coincidence/confirmation from God was that the hospital is in Aurora, CO.  My other daughters have changed their favorite princess over the years but Lydia has never changed her favorite princess…it has always been Princess Aurora, A.K.A. Sleeping Beauty.

So I followed God a little further and checked out their website.  The direct phone number is 720-777-1234.  These numbers probably don’t mean anything to anybody else but to us 777 is Scott’s favorite number.  Years ago it use to be on every code he had.  A few years ago I would see the clock or wake up in the night and see 12:34.  The Lord led me to Genesis 12:34.  This is where the Israelites had to store their bread in their cloak and get out of Egypt.  It was unleavened bread because it did not have time to rise.  Since then God has used it to signal a “suddenly” about to happen.  He also uses it to signal everything is now put in order 1  2  3  4…

The “test” would be if we would be able to talk to anyone in Colorado. We have left messages at our former hospital and current and they have not returned our calls.  We never get right through.  But I called Colorado and in one ring was talking with the head nurse.  The next day the Senior doctor of pediatric oncology called me.  We talked for over 30 minutes.  He directed me on to the next person I needed to speak with and I got through to them immediately.  It truly was amazing.  It nearly freaked me out except that the chase was so exciting.  I have learned to love playing “chase” with God.

As you can imagine when we requested on Monday to get a second opinion our doctors were not happy.  They waited two days to send the referral request to the insurance company and we were discouraged by the management care person that this would not happen.  We would have to pay for it out of pocket mainly because MUSC has a good reputation for this treatment plan and Colorado was too far away.  If we were permitted a second opinion we would have to go somewhere closer…BUT GOD.  Please understand, I am not looking for another place only to be at the place God has for Lydia.  I wouldn’t have been looking if so many things had not lined up.  We thanked them for their council and proceeded to keep the ball rolling.  Colorado has all of Lydia’s medical records and  the insurance company has the information they need to make a decision.  Now we wait…wait as in expectation of what God will do.  He may move on this or not but even so we will worship the Lord.  The ball truly is in His hands.  This is an impossible situation.  God is the only one who can move the mountains of impossibility and make them possible.  Since we have shared our plan about a second opinion all the appointments have been rushed so what was to take place in three weeks is now two.

Even if you don’t believe that people can hear and be directed by God, I think we could all say there are enough “coincidences” that we can’t ignore that God may pull a “suddenly” this week.  Honestly, all I want is for Lydia to be where God is.  On January 25th, He gave her the promise of Shadrach, Meshach, and Abed-Nego in Daniel 3.  The Son of God walked with them in the fire and the fire had no power over their body.

You may join us in agreement:

1. that God is working all things together for Lydia’s benefit

2. for God’s will to be done on earth as it is in heaven for Lydia

So if you should see that we are headed to Colorado you know nothing is wrong but God has made a way when there was no way…

We are walking through the open door.

In His Presence,


Read Full Post »

Don’t you hate it when you are accountable for something you already learned?!  Late last week I was reminded of the chapter I wrote in The Launching Pad on the Waiting Tank.  I call it “Tank Time”.  This is the time where it can seem that you are put on the shelf or things are at a standstill or you are stalling out…it can be described in so many different ways but it still is the same thing…we are waiting.  Waiting for all thing to be aligned for God’s great plan.

Today, we went for Lydia’s bone marrow biopsy.  The results will not be back until Thursday.  They cannot move forward with the bone marrow transplant preparations until her Leukemia is 0.  None of the matches worked out so the doctor has reserved chord blood for the transplant.  Meanwhile we have a consultation with the radiologist on Wednesday.  Friday and Monday will be more tests.  This is all the “yuck” part of waiting so we have decided to focus on something better…God.

In the waiting tank:

we celebrate the greatness of our God

we declare His wondrous ways

we anticipate His instructions being carried out to set things in order

we receive strength to lay hold of the promises of God

we remember all God has done for us

we rejoice over all He is doing on our behalf

we remove all lies and doubt because we know our God is in control and holds us in His right hand

we dedicate our lives with even more resolve to trust our God

we saturate ourselves in worship as we love on Him and He pours His love upon us.

Some how, some way, Jesus, in Mark 4:35-41, was able to sleep in the boat when the winds were howling and waves were crashing into the boat.  The disciples thought they were going to die.  Jesus sleeping at a time that made others feel like they were going to die, is “the PEACE that surpasses all understanding”. He totally trusted His Father and His Father had shown Him they were to go to the other side.  He had told the disciples, “We are going to the other side” and they jump in the boat and start rowing.  Meanwhile, Jesus falls asleep at the stern of the boat.  He was not underneath, he was sleeping in the middle of tormenting winds and torturing waves.  The disciples finally realized they were losing and the boat was taking in more water than they could bail out.  They go to Jesus, “Do you not care that we perish”?

What a question!  How many times have you and I asked that question over different circumstances in our lives?  Jesus does care.  No matter what you are going through right now or in the future or what you have come through in your past make sure you understand this…”Jesus cares”.

His sleeping didn’t mean He didn’t care.  His sleeping meant that He had complete trust in the Father’s words.  The Bible tells us a number of times that Jesus did only what He saw the Father doing.  Jesus had seen the Father at work on “the other side” and was headed to join His Father.  He completely trusts God; therefore, He could sleep in the midst of turbulent winds and terrifying waves pouring water into the boat.

The disciples were dumbfounded.  They had no idea how to tap into God’s perfect peace, knowing God would do what He said He would do…get them to the other side.  When Jesus said to the sea, “Peace, be still!”  The winds and the waves became calm…however, could He have also been speaking to the disciples?  Fear was taunting them like the winds and their faith was as loose as the waves that were tossing them all over the sea.  When He says, “Peace,” their fear dissipates because they remember the word of the Lord, “We are going to the other side.”  And the wavering of their faith is made solid when Jesus says, “Be still.”

Another powerful scripture is, “Be still and know that I am God”.  Fear can creep in ever so slyly but its main goal is to steal your faith.  When we lose faith in the word God has spoke to us we lose focus.  Without focus we have no goal or destination or direction.  Fix your eyes on Jesus, the author and finisher of your faith and focus on the word God has spoken to you.

“We are going to the other side!!!!”  If the storm comes stop bailing and stand ‘in Christ’ to declare, “Peace, be still”!   Sometimes you have to speak it out just so that you can convince yourself that you actually believe what God has told you.

If you are in the storm right now and you are bailing with all your might I would ask you to stand and declare, “Peace, be still!”  Then instead of spending all of your time bailing, spend it focusing on all God has done, all God is doing, and all He is going to do.  Then walk in His perfect peace that EVERYTHING is going to work out according to His good, perfect, and acceptable plan because His love NEVER fails!!!  AMEN!

Read Full Post »

So I arrive back at the hospital and almost all of Lydia’s hair has fallen out and is matted to the back of her head!!!  “What happened?” Is an understatement!

After all the company left we get worship music playing and I take Lydia to the couch to comb through her hair and remove the tangled lost hair.  My insides are churning as I pray to keep my anger from overtaking me.  A couple of times Lydia leans back into me and I wrap my arms around her.  The tech sees this but we say nothing not because we can’t but because we don’t need to speak.  Sometimes it is just best not to say anything.  But then the nurse comes in and thinks she is going to “help.”

Her first tactic is to tell Lydia that they don’t know how to deal with children up here who have hair so they are all better now that she has lost her hair.  And will be even better when she loses it all.  Blink Blink…Did she really say that!  Surely not!  Lydia turned her head away and cried.  I was so proud of her.  I held her in my arms.

So the nurse proceeds to tell her to cry as much as she wants and then addresses me, “It is okay for you to cry too.”  Blink blink…really!!! Did she really say that!!!  That is really the best “line” you have when you have worked in children’s oncology for 16 years!  Now that is UNBELIEVABLE!!

Politely, no really, I was polite.  “I don’t think you are helping the situation.  Would you please leave?”

She had the nerve to ignore what I said and continue to “counsel” my daughter.  So I let Lydia turn completely in to me and in my mind I began rebuking all this nurse was saying until I finally had to ask her to leave again. And I was thankful when she did.

I held Lydia and she began to sing with the song that was playing, Whom shall I fear by Chris Tomlin.  We continued working through her matted hair.  As it piled up on the table she would cry and lean back into me a few more times.  She asked me if I was mad.  “Yes, but not the way you think.”

I shared with her how Jesus got mad, it was a righteous anger.  The Bible tells us He took the time to weave His own whip.  Then he turned it on the moneychanger’s tables in the temple.  He said, “My house shall be called a house of prayer, but you have made it a den of thieves.”  I explained I was not mad at the nurse because she doesn’t no any better just like the others who ill-advised her today.  I was mad at the enemy who seeks to steal her hair, her dignity and cause her shame for something that was out of her control.

In one of Lydia’s earlier cries she had said she didn’t want people to make fun of her.  What could I say, people will be people and as proof of the nurse, they will say stupid things and they will hurt rather than give her encouragement to believe for the best.

We talked about John 10:10.  It says that the enemy comes to steal, kill, and destroy but I (Jesus) have come that you may have life, and have it more abundantly.  So we talked about the enemy stealing her hair but that the Bible says when the thief is caught he has to pay back double, 7 times, or all that is in his house.  So we prayed that she would get double her hair and that it would grow in 7 times faster!  Ha!

As I finished getting the last bit of lost hair untangled and out we talked about Daniel in the lions den and Jonah in the whale.  Daniel stared down lions all night and Jonah was in complete darkness with who knows what swimming around him in the belly of the big fish… but God protected them from all harm even though they had been put in harms way.

Tonight we did “box” someone…we boxed the enemy.  I saw my 7 year old daughter get kicked down when the enemy stole her hair and she endured the looks of the people, my bewilderment, the reckless words of the nurse and others…only to rise again into the presence of her God!  After her bath we declared her verses of promise that are posted around her room and she laid hands on her body as we declared her body to line up with God’s perfect will to heal her.

Proverbs 24:16a

For a righteous man may fall seven times AND RISE AGAIN!!!

I am in awe of God’s work in the life of my 7 year old.  She was kicked around today by so many who told her she just had to take this…not a chance, if you stay down the enemy will only continue to kick you and take even more from you.  You might as well get up and give yourself a fighting chance to stand in faith for the promises God has given you.  So we got up and we are standing together on the promises of God for her life!

Read Full Post »